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    Last Updated: 01/09/2026

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    MediFind found 3996 doctor with experience in Aicardi-Goutieres Syndrome. Of these, 3225 are Experienced, 672 are Advanced, 90 are Distinguished and 9 are Elite.

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    3,996 providers found
      Simona Orcesi
      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Pavia, IT 

      Simona Orcesi practices in Pavia, Italy. Ms. Orcesi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Aicardi Syndrome, Premature Infant, and Leukodystrophy.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Edinburgh, SCT, GB 

      Yanick Crow practices in Edinburgh, United Kingdom. Ms. Crow is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Spondyloenchondrodysplasia, and Frostbite.

      Elite in Aicardi-Goutieres Syndrome
      Pediatric Neurology | Neurology
      Elite in Aicardi-Goutieres Syndrome
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

      Learn about our expert tiers
      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Brescia, IT 

      Elisa Fazzi practices in Brescia, Italy. Ms. Fazzi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Cerebral Palsy, Spastic Diplegia Infantile Type, and Ataxia-Telangiectasia.

      Elite in Aicardi-Goutieres Syndrome
      Child and Adolescent Psychiatry | Neurology
      Elite in Aicardi-Goutieres Syndrome
      Child and Adolescent Psychiatry | Neurology
      3401 Civic Center Blvd, Chca Nuerology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Laura Adang is a Child and Adolescent Psychiatrist and a Neurologist in Philadelphia, Pennsylvania. Dr. Adang is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gastrostomy.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Min Kirsch-Lee practices in Dresden, Germany. Kirsch-Lee is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Frostbite, and Cutaneous Lupus Erythematosus (CLE).

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      St Mary's Hospital, Health Innovation Manchester, 
      Manchester, ENG, GB 

      Gillian Rice practices in Manchester, United Kingdom. Ms. Rice is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Singleton-Merten Syndrome, Spondyloenchondrodysplasia, and Perniosis.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Pavia, IT 

      Jessica Garau practices in Pavia, Italy. Ms. Garau is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Septo-Optic Dysplasia.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Milan, IT 

      Cristina Cereda practices in Milan, Italy. Ms. Cereda is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Aicardi-Goutieres Syndrome, and Movement Disorders.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome

      Virtual Radiologic Professionals, LLC

      11995 Singletree Ln, Ste 500, 
      Eden Prairie, MN 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Goldberg is rated as an Advanced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Tenosynovitis, Scoliosis, Hepatocerebral Degeneration, and Diverticular Disease.

      Shaena H. Blevins
      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Ballad Health Medical Associates Neurology

      16000 Johnston Memorial Drive, Suite 312, 
      Abingdon, VA 
      Languages Spoken:
      English
      Offers Telehealth

      "Shaena Blevins, MD, is a board-certified neurologist who practiced neurology in Gainesville, Georgia, for more than a decade. She loves her patients and, ""the long-term relationships and continuity of care that being a neurologist allows,"" she says. Dr. Blevins feels it is key to listen to her patients and their caregivers. She also believes, ""it is of utmost importance for my patients to understand their disease and treatment options."" Dr. Blevins and her husband are happy to be returning 'home' to the Appalachian Highlands to raise their children around family. Procedures". Dr. Blevins is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Essential Tremor, Cerebellar Degeneration, Transverse Myelitis, and Memory Loss.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Virtual Radiologic Professionals, LLC

      11995 Singletree Ln, Ste 500, 
      Eden Prairie, MN 
      Languages Spoken:
      English

      . Dr. Curry is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Mohr-Tranebjaerg Syndrome, PEHO Syndrome, and X-Linked Intellectual Disability, Siderius Type.

      Experienced in Aicardi-Goutieres Syndrome
      Radiology | Interventional Radiology
      Experienced in Aicardi-Goutieres Syndrome
      Radiology | Interventional Radiology

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English

      . Dr. Harpole is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Pleurisy, Pleural Effusion, Gallbladder Disease, and Diverticular Disease.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Blue Ridge Radiology, P.C.

      3053 W State St, 
      Bristol, TN 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Smith is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Osteopenia, Melorheostosis with Osteopoikilosis, Melorheostosis, and Tenosynovitis.

      Experienced in Aicardi-Goutieres Syndrome
      Radiology | Interventional Radiology | Nuclear Medicine
      Experienced in Aicardi-Goutieres Syndrome
      Radiology | Interventional Radiology | Nuclear Medicine

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Semaan is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Gallbladder Disease, Subarachnoid Hemorrhage, Pleurisy, Vertebroplasty, and Bone Graft.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English

      . Dr. Webber is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Non-Alcoholic Fatty Liver Disease, Lymphofollicular Hyperplasia, Visceromegaly, and Emphysema.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Lafayette Clinic - Neurology

      300 Exempla Circle, Suite 300, 
      Lafayette, CO 
      Experience:
      11+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Zachary Macchi is a Neurologist in Lafayette, Colorado. Dr. Macchi has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Cerebellar Degeneration, Movement Disorders, Neuronal Intranuclear Inclusion Disease (NIID), and Parkinson's Disease. Dr. Macchi is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English

      . Dr. Daniel is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Visceromegaly, Non-Alcoholic Fatty Liver Disease, Bronchogenic Cyst, and CAPOS Syndrome.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English

      . Dr. Carey is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Melorheostosis, Melorheostosis with Osteopoikilosis, Osteopenia, and Bronchogenic Cyst.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rayus/Foundation Radiology Group

      6400 Brooktree Ct, Ste 350, 
      Wexford, PA 
      Languages Spoken:
      English

      . Dr. Port is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Ascites, Gallbladder Disease, Visceromegaly, and Vertigo.

      Showing 1-20 of 3,996

      Last Updated: 01/09/2026

      What is the definition of Aicardi-Goutieres Syndrome?

      Aicardi-Goutières syndrome is a disorder with variable signs and symptoms, but it primarily affects the brain, the immune system, and the skin.

      When should I see an Aicardi-Goutieres Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Aicardi-Goutieres Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Aicardi-Goutieres Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Aicardi-Goutieres Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Aicardi-Goutieres Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Aicardi-Goutieres Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Aicardi-Goutieres Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Aicardi-Goutieres Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Aicardi-Goutieres Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Aicardi-Goutieres Syndrome doctors near me?

      Look for the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Aicardi-Goutieres Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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